As I sat with Chloe on my lap and listened to the geneticist give the diagnosis of Angelman Syndrome, I was numb. She had not gotten all of the 15th chromosome from me that she needed, it was my fault she was this way. The doctor listed all the things that my daughter would never be able to do and all my dreams died at that moment.
I was excited to be a mom again, I had all of these things I wanted to do. To really enjoy motherhood and now they were gone. Tears streamed down my face and I gathered her up and cried all the way to the car. She was my beautiful and perfect little girl and I felt like she had been cursed. I asked God, “What had I done to deserve this”? I went from numb to mad to everything in between but the warrior in me knew I had to fight and push because if I didn’t I would be doing my daughter a disservice.
So with each accomplishment from holding her cup, walking by herself, and saying “mom” it was everything the doctor had said she wouldn’t do. Now if you ever met Miss Chloe, you would see she has a very strong will and sometimes it can be difficult to deal with but I believe without it she would not be where she is today, a 6 year old who loves to run, play with her hamster, and watch Mickey Mouse Clubhouse over and over again.
I won’t say that I don’t have my bad days but they are fewer and far between and when she smiles at me, everything seems right with the world!
Submitted by Latrieva Boston