Fact sheet created by MothertoBaby regarding lead exposure and pregnancy. This information should not take the place of medical care and advice from your health care provider.
A series of 7 videos produced by the Midwest Genetics Network about living with and caring for individuals with a genetic condition. Topics include receiving a diagnosis, care coordination, transition to adulthood, and metabolic foods and formula.
This worksheet shares steps to improve care in emergency departments (ED) of hospitals and clinics for people with sickle cell disease (SCD). The fact sheet was created to help improve healthcare in the ED for patients with SCD.
This brief fact sheet defines some commonly used insurance terms.
Michigan Alliance for Families offers this fact sheet regarding lead poisoning and what families can do if they are worried about their children.
Mommies of Miracles is the world’s largest virtual support group for mothers of children who have medical complexities, life-limiting conditions, or developmental disabilities. Our mission is to eliminate the isolation mothers of exceptional needs children experience on a daily basis by providing an extended network of resources, products & services, grief support, family matching, and hope.
2-1-1 provides free and confidential information and referral. Call 2-1-1 for help with food, housing, employment, health care, counseling and more.
This guide summarizes information on education, health, human services, early intervention, and other agencies that help children with special healthcare needs and their families.
Spanish Resources: https://spanadvocacy.org/downloads/spanish/
A map of local community mental health care providers in Michigan
This website contains information, resources and tools about programs to strengthen parent professional partnerships. The NCFPP believes that strengthening the role of families as partners in the delivery of health care to their children is a critical first step in improving the quality of care for children with special health care needs.