The Fragile X Association of Michigan provides families impacted by Fragile X support groups, advocacy, research information and resources.
Fragile X Association of Michigan
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English
Cystic Fibrosis Foundation
The Cystic Fibrosis Foundation provides information on cystic fibrosis, information on obtaining financial support, medical care information, research information, daily living and transition information, assistance services, advocacy, and community support.
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La Fundación de Fibrosis Quística proporciona información sobre fibrosis quística. Tienen información sobre cómo obtener ayuda financiero, asistencia médica, investigación, la vida diaria y la transición, servicios de asistencia, abogacía y apoyo comunitario.
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La Fundación de Fibrosis Quística proporciona información sobre fibrosis quística. Tienen información sobre cómo obtener ayuda financiero, asistencia médica, investigación, la vida diaria y la transición, servicios de asistencia, abogacía y apoyo comunitario.
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Advocacy, Advocacy & Support, Affordable Care Act, Community Resources, Education, Employment, Equipment, Financial, Health Insurance & Finance, Insurance, Intervention, Medicaid, Medical Information, Medical Service, Medical Services & Testing, Mental, Services Other, Support Group, Support Other, Therapies, Transition, Transition to Adulthood
Advocacy, Advocacy & Support, Affordable Care Act, Community Resources, Education, Employment, Equipment, Financial, Health Insurance & Finance, Insurance, Intervention, Medicaid, Medical Information, Medical Service, Medical Services & Testing, Mental, Services Other, Support Group, Support Other, Therapies, Transition, Transition to Adulthood
National Center for Learning Disabilities (NCLD)
The National Center for Learning Disabilies (NCLD) focuses on empowering parents and young adults, transforming schools and advocating for equal rights and opportunities. The site offers various resource information, policy information and updates, information laws related to individuals with disabilities and education, and a peer support forum.
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English
Cure Duchenne
Cure Duchenne offers in depth information on Duchenne, medical services and interventions, research, family support, and opportunities to be involved and raise funds for the fight to cure Duchenne.
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Advocacy, Advocacy & Support, Community Resources, Education, Equipment, Intervention, Medical Information, Medical Service, Medical Services & Testing, Support Other, Therapies
Advocacy, Advocacy & Support, Community Resources, Education, Equipment, Intervention, Medical Information, Medical Service, Medical Services & Testing, Support Other, Therapies
Languages:
English
English
Arthritis Foundation
The Arthritis Foundation website provides medical information, insurance information, daily living information (pain management, diet, exercise, etc.), and other tools and resources. The Arthritis Foundation is also involved in advocacy efforts.
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Categorized:
Advocacy, Advocacy & Support, Affordable Care Act, Community Resources, Education, Financial, Health Insurance & Finance, Insurance, Medical Information, Medical Service, Medical Services & Testing, Mental, Therapies
Advocacy, Advocacy & Support, Affordable Care Act, Community Resources, Education, Financial, Health Insurance & Finance, Insurance, Medical Information, Medical Service, Medical Services & Testing, Mental, Therapies
Languages:
English
English
Juvenile Diabetes Research Foundation (JDRF)
The Juvenile Diabetes Research Foundation (JDRF) is the top global organization funding type 1 diabetes (T1D) research. JDRF conducts advocacy efforts, funds research initiatives, provides medical information, daily life (diet, exercise, school, etc.) impacts, treatment information, information on health insurance, peer support, various toolkits, and other resources.
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Advocacy, Advocacy & Support, Community Resources, Education, Equipment, Financial, Health Insurance & Finance, Insurance, Medical Information, Medical Services & Testing, Safety, Safety, Support Group, Transportation
Advocacy, Advocacy & Support, Community Resources, Education, Equipment, Financial, Health Insurance & Finance, Insurance, Medical Information, Medical Services & Testing, Safety, Safety, Support Group, Transportation
Languages:
English
English
National Autism Association
The National Autism Association website provides webinars, a digital library, toolkits on topics including siblings and the IEP process, research information, teacher resources, list of support groups, information on autism, and safety information for first responders, teachers and parents.
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Advocacy, Advocacy & Support, Community Resources, Education, Intervention, Medical Information, Medical Services & Testing, Safety, Safety, Sibling, Support Group, Therapies
Advocacy, Advocacy & Support, Community Resources, Education, Intervention, Medical Information, Medical Services & Testing, Safety, Safety, Sibling, Support Group, Therapies
Languages:
English
English
National Down Syndrome Society
The National Down Syndrome Society website offers employment resources, inclusive recreation, advocacy, local parent supports, lending libraries, medical professional and teacher trainings and other resources.
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Advocacy, Advocacy & Support, Community Resources, Education, Employment, Recreation, Sibling, Support Group, Transition, Transition to Adulthood
Advocacy, Advocacy & Support, Community Resources, Education, Employment, Recreation, Sibling, Support Group, Transition, Transition to Adulthood
Languages:
English
English
National Down Syndrome Congress
The National Down Syndrome Congress is a membership organization that focuses on providing resources, information, an adult sibling program, a rural outreach program, advocacy and policy efforts, education resources, family webinars and a family toolkit.
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Spina Bifida Association
The Spina Bifida Association website provides information on spina bifida, a list of clinics providing medical services, various resources, support, and advocacy around the prevention of spina bifida.
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Categorized:
Advocacy, Advocacy & Support, Community Resources, Education, Medical Information, Medical Service, Medical Services & Testing, Support Other
Advocacy, Advocacy & Support, Community Resources, Education, Medical Information, Medical Service, Medical Services & Testing, Support Other
Languages:
English
English