Syndromes Without A Name USA


1745 Lorna Ln
Otsego, MI 49078

Websites/Social Media:


We are a nonprofit tax exempt 501c3 organization that advocates for children and young adults who have syndromes without a name. We offer support, advice and information on the challenges that families face when there is no diagnosis. We also advocate for changes in the medical community that will benefit undiagnosed individuals.