The Journey Through Diagnosis: A guide for families of children with a genetic condition

This guide provides information and support to families whose child has been identified with a genetic condition. The guide is written from the family perspective and covers a variety of topics, including emotions, family relationships, obtaining information and support, medical care, medical insurance, and finding your voice.
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American Cancer Society

The American Cancer Society provides support groups, information, resources, research information, financial information and more for individuals impacted by cancer.
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La American Cancer Society proporciona grupos de apoyo, recursos, información sobre: investigación, ayuda financiero, y mucho mas para individuos afectados de un diagnóstico de cáncer.
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Cystic Fibrosis Foundation

The Cystic Fibrosis Foundation provides information on cystic fibrosis, information on obtaining financial support, medical care information, research information, daily living and transition information, assistance services, advocacy, and community support.
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La Fundación de Fibrosis Quística proporciona información sobre fibrosis quística. Tienen información sobre cómo obtener ayuda financiero, asistencia médica, investigación, la vida diaria y la transición, servicios de asistencia, abogacía y apoyo comunitario.
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National Center for Learning Disabilities (NCLD)

The National Center for Learning Disabilies (NCLD) focuses on empowering parents and young adults, transforming schools and advocating for equal rights and opportunities. The site offers various resource information, policy information and updates, information laws related to individuals with disabilities and education, and a peer support forum.
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