Michigan SIBS exists to provide adult siblings of individuals with disabilities the information, resources, and support to advocate with/and for their brothers and sisters to promote leadership roles of siblings within the disability community. It is the state chapter of the national Sibling Leadership Network.
The MDCH Genomics Program has initiated a surveillance and prevention project to assess the impact of Sudden Cardiac Death in the Young and identify action steps for prevention. The website contains data and information for providers and families about SCDY which claims the lives of more than 300 Michigan children and young adults a year.
Michigan Parents of Children with Visual Impairments is an affiliate of the National Association of Parents of Children with Visual Impairments (NAPVI.) We strive to help families with support, information, advocacy, and events that are fun, educational, and practical. MPVI is a group of families, members of the blind community, and professionals who have or work with children who are blind or visually impaired.
Newborn Screening is a public health program required by Michigan law to find babies with rare but serious disorders that require early treatment. All babies need to be tested in order to find the small number who look healthy but have a rare medical condition. Babies with these conditions seem healthy at birth but can become very sick in a short time.
