The Journey Through Diagnosis: A guide for families of children with a genetic condition

This guide provides information and support to families whose child has been identified with a genetic condition. The guide is written from the family perspective and covers a variety of topics, including emotions, family relationships, obtaining information and support, medical care, medical insurance, and finding your voice.


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State Health Insurance Assistance Program (SHIP)

Michigan’s State Health Insurance Assistance Program (SHIP) is Michigan’s free, unbiased resource to help you navigate Medicare. Local, certified counselors are available to guide you. They offer personal assistance at no charge. SHIP counselors are your guide to maximize your benefits and savings. Michigan’s SHIP doesn’t sell Medicare plans–they just help you understand them.


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Affordable Care Act (ACA)

This is the official Affordable Care Act (ACA) website. It provides easy-to-understand information for consumers about health insurance enrollment, how to change/update your plans, and how to use your coverage. The ACA website also provides links to federal tax documents, and other resources related to navigating the Marketplace.

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Spanish Site: https://www.cuidadodesalud.gov/es/


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American Cancer Society

The American Cancer Society provides support groups, information, resources, research information, financial information and more for individuals impacted by cancer.

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La American Cancer Society proporciona grupos de apoyo, recursos, información sobre: investigación, ayuda financiero, y mucho mas para individuos afectados de un diagnóstico de cáncer.


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Children’s Hemiplegia and Stroke Association (CHASA)

The Children’s Hemiplegia and Stroke Association (CHASA) provides information for those newly diagnosed, a support community, information on medical issues and treatment, information on living, school and sports and resources such as grants and scholarships.


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Cystic Fibrosis Foundation

The Cystic Fibrosis Foundation provides information on cystic fibrosis, information on obtaining financial support, medical care information, research information, daily living and transition information, assistance services, advocacy, and community support.

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La Fundación de Fibrosis Quística proporciona información sobre fibrosis quística. Tienen información sobre cómo obtener ayuda financiero, asistencia médica, investigación, la vida diaria y la transición, servicios de asistencia, abogacía y apoyo comunitario.


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Arthritis Foundation

The Arthritis Foundation website provides medical information, insurance information, daily living information (pain management, diet, exercise, etc.), and other tools and resources. The Arthritis Foundation is also involved in advocacy efforts.


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Juvenile Diabetes Research Foundation (JDRF)

The Juvenile Diabetes Research Foundation (JDRF) is the top global organization funding type 1 diabetes (T1D) research. JDRF conducts advocacy efforts, funds research initiatives, provides medical information, daily life (diet, exercise, school, etc.) impacts, treatment information, information on health insurance, peer support, various toolkits, and other resources.


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