We are a nonprofit tax exempt 501c3 organization that advocates for children and young adults who have syndromes without a name. We offer support, advice and information on the challenges that families face when there is no diagnosis. We also advocate for changes in the medical community that will benefit undiagnosed individuals.
PWSA-MI is a Michigan Chapter of PWSAUSA the National Organization. We give families information and support to handle the problems associated with PWS through education, advocacy and research.
NOFAS works to prevent prenatal exposure to alcohol, drugs, and other substances known to harm fetal development by raising awareness and supporting women before and during their pregnancy, and supports individuals, families, and communities living with Fetal Alcohol Spectrum Disorders (FASDs) and other preventable intellectual/developmental disabilities. Check out their Michigan resources page!
Michigan Hands & Voices is a chapter of the nationwide non-profit organization dedicated to supporting families of children who are Deaf or Hard of Hearing, as well as the professionals who serve them.
The Birth Defects Follow-up Program at the Michigan Department of Health & Human Services helps families find support and services. The program provides information for families and health care providers about birth defects and rare disorders.
MI department that handles a wide range of topics relating to children and families including foster care & adoption, child support, abuse & neglect, Healthy Michigan Plan, safe sleep for infants, and behavioral health & developmental disabilities.
There are two Social Security programs for individuals with disabilities. Information about SSI (supplemental security income) and SSDI (Social Security Disability Insurance) can be found on this website, as well as instructions about applying for benefits.
The Statewide Autism Resources and Training (START) Project is funded by the Michigan Department of Education, Office of Special Education to provide evidence-based training, technical assistance, and resources to educators in Michigan that serve students with Autism Spectrum Disorder.
The Children’s Waiver Program is a federal entitlement program that provides Medicaid funded home and community-based services to children with developmental disabilities and who have challenging behaviors and/or complex medical needs. This waiver provides services to support the family so that the child can remain at home with his/her family.
The Family Support Subsidy (FSS) Program provides financial assistance to families that include a child with severe developmental disabilities. The intent is to help make it possible for children with developmental disabilities to remain with or return to their birth or adoptive families. The program provides a monthly payment. Families are able to use this money for special expenses incurred while caring for their child.