Syndromes Without A Name USA

We are a nonprofit tax exempt 501c3 organization that advocates for children and young adults who have syndromes without a name. We offer support, advice and information on the challenges that families face when there is no diagnosis. We also advocate for changes in the medical community that will benefit undiagnosed individuals.
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National Organization on Fetal Alcohol Syndrome

NOFAS works to prevent prenatal exposure to alcohol, drugs, and other substances known to harm fetal development by raising awareness and supporting women before and during their pregnancy, and supports individuals, families, and communities living with Fetal Alcohol Spectrum Disorders (FASDs) and other preventable intellectual/developmental disabilities. Check out their Michigan resources page!
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Preparing for Disaster for People with Disabilites and Other Special Needs

Mobility problems and hearing, learning, or seeing disabilities can add complication to responding to emergencies. It is important to plan ahead. Our booklet Preparing for Disaster for People with Disabilities and other Special Needs gives tips on getting informed, making a plan, assembling a kit, and keeping your plans up to date
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Siblings Perspectives: Guidelines for Parents

Throughout numerous accounts of parents and siblings of children with disabilities, it becomes very clear; when a child in the family has a disability, it affects the whole family. This article is meant to arm you with important information and practical suggestions for helping and supporting siblings of children on the autism spectrum.
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