We are a nonprofit tax exempt 501c3 organization that advocates for children and young adults who have syndromes without a name. We offer support, advice and information on the challenges that families face when there is no diagnosis. We also advocate for changes in the medical community that will benefit undiagnosed individuals.
PWSA-MI is a Michigan Chapter of PWSAUSA the National Organization. We give families information and support to handle the problems associated with PWS through education, advocacy and research.
NOFAS works to prevent prenatal exposure to alcohol, drugs, and other substances known to harm fetal development by raising awareness and supporting women before and during their pregnancy, and supports individuals, families, and communities living with Fetal Alcohol Spectrum Disorders (FASDs) and other preventable intellectual/developmental disabilities. Check out their Michigan resources page!
Michigan Hands & Voices is a chapter of the nationwide non-profit organization dedicated to supporting families of children who are Deaf or Hard of Hearing, as well as the professionals who serve them.
The Birth Defects Follow-up Program at the Michigan Department of Health & Human Services helps families find support and services. The program provides information for families and health care providers about birth defects and rare disorders.
MI department that handles a wide range of topics relating to children and families including foster care & adoption, child support, abuse & neglect, Healthy Michigan Plan, safe sleep for infants, and behavioral health & developmental disabilities.
The Children’s Waiver Program is a federal entitlement program that provides Medicaid funded home and community-based services to children with developmental disabilities and who have challenging behaviors and/or complex medical needs. This waiver provides services to support the family so that the child can remain at home with his/her family.
The Family Support Subsidy (FSS) Program provides financial assistance to families that include a child with severe developmental disabilities. The intent is to help make it possible for children with developmental disabilities to remain with or return to their birth or adoptive families. The program provides a monthly payment. Families are able to use this money for special expenses incurred while caring for their child.
The Michigan Genetics Resource Center is a public health education service. The site is designed to share Michigan and national resources in order to promote population health through the appropriate use of genetic information and services. Clinical genetic service and support group directories, teaching tools, and information for policy makers are available as well as Michigan and national program descriptions and links.
Michigan’s Aging and Disability Resource Centers Program/No Wrong Door System (NWD) is the best place for family, friends, caregivers and providers to get information about long-term supports and services for older adults and persons with disabilities. Whether you are looking for services to stay in your home and live independently or options for assisted living and nursing home care, the ADRC program can help you learn about what is available for you in your community. Check out their website to search the statewide ADRC Database to find out more information.