Cure SMA chapters provide a base of community and support for families affected by SMA, work together to organize Walk-n-Rolls or other fundraising events, and keep their members informed of opportunities for local advocacy and awareness.
We are an All Volunteer national and international support group specifically for Fatty Oxidation Disorders and a 501c3 non-profit corporation that raises funds for the training of new FOD Professionals and for future FOD Research, as well as for our daily operations, National Conferences, and probono face-to-face or skype Grief Support for Bereaved Parents, Families, and other adults living with loss from any cause.
Grand Rapids chapter of CHADD. The chapter engages in AD/HD advocacy work and has adult and parent support groups.
Hope for HIE is the premiere resource for families, worldwide, whose infants and children experience a hypoxic brain injury (hypoxic ischemic encephalopathy). Providing awareness, education and support, Hope for HIE has a comprehensive support network, for families and professionals, to connect and promote hope in the journey with HIE.
We are a support group for families of children at any stage in their g-tube journey, whether the tube is a future possibility, a recent acquisition, or an old friend...a permanent necessity or meeting a temporary need while their child transitions to oral feedings.
